FTD Disorders Registry

The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
• behavioral variant FTD (bvFTD)
• primary progressive aphasias (PPA)
• progressive supranuclear palsy (PSP)
• corticobasal degeneration (CBD)
• FTD with motor neuron disease (also called FTD-ALS)

Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures.